When you’re in a relationship and you have a chronic illness you’re not in it alone. Your partner might not experience the symptoms but they’re living it with you day-in day-out. I recently came across a piece of research by Golics et al (2013) exploring the impact of patients’ chronic disease on family quality of life. Interviews… Read More Chronic illness from a partner’s perspective
I was always a sickly child. And I grew up to be a sickly adult. I was the type of person who always had something wrong with them, so much so that if I would complain about an ailment, people would say ‘oh, what now?!’ I never thought much of it – that’s just who… Read More Fibromyalgia: my diagnosis journey through the NHS
What does wellness mean to you? Should we – the chronic illness community – be redefining wellness? Google ‘wellness’ and you’ll find countless definitions, centring mainly around positive well-being. This goes beyond physical health to encompass well-being in many dimensions of a person’s life, ie mentally, socially, spiritually, and so on. It can also be… Read More Redefining wellness for the chronic illness community
We have probably all put people into categories… ‘the quiet one’, ‘the sporty one’, ‘the funny one’. But since I’ve experienced chronic illness I have started to categorise people differently. Here are 5 people you’ll meet if you have a chronic illness too. 1. The expert This person knows someone with your diagnosis, or knows… Read More 5 types of people you’ll encounter if you have a chronic illness
My relationship with my GP has been difficult in the time leading up to my Fibromyalgia diagnosis and in the period following. But yesterday I experienced a particularly upsetting appointment which led me to consider which of us is the ‘expert’ – patient or professional. Read on for my story. Medication mix-ups When officially… Read More Patient or medical professional: who is the expert?